I was diagnosed about 8 plus years ago. Received infusion therapy with Retuxum. About 5 years later I received another infusion therapy of Retuxum. I find that now I tire easily and my hip/ knees/ back hurt - maybe arthritis. The hematologist says the issues are mechanical ( I did injure myself a few years ago). However, I have had a bad back since my 20's - I am now 64. My older sister was just diagnosed with an igg deficiency when she had pneumonia and was not recovering. When she was treated, the pneumonia meds began to work. Now the immune specialist says she has MGUS like me! She too has problems with her hip, etc. She is still undergoing tests to see if she has cancer. Is mine "smoldering?" I see my hematologist next month. I am going to ask him to test my igg levels because I am so very tired all the time. I can't multitask anymore and even when I do a little housework, etc., I need to sit down and rest. I just read that igg deficiency and igm protein deficiencies are related so that is why I need to find out whether or not the igg protein is too low -it causes people to be tired and not recover well when sick. has anyone had this as an issue? Also, Mayo clinic online said that there is a genetic component to MGUS. Interesting as I suspect my father had it and now my sister has it. - DAB
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