I have MGUS. I was diagnosed a few months ago but probably have had it for quite awhile. I have 10 semi-numb toes which scare me, but there's no pain. I've also had intense itching with hives and sores, probably from scratching, for almost 3 years. Nothing but ice helps the itching. I have 2 relatives that died from MM; my grandmother and my uncle; both on my maternal side. So, I guess the risks are greater for me. I'm 68 years old; look and feel young. I have extremely low immunity (virtually no b and t cells); however, I don't ever get sick. And usually have lots of energy. The doctors don't understand why. I'm so scared that I can hardly stop thinking about it. Tomorrow is a new doctor's appt at NYU in the city. Hopefully he'll say something encouraging or at least tell me something that I can do. Thank you again for your comments. Good luck to everyone. I understand the fear. Alie - Alie Winokur
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